Clinical ALS Resources
We've developed a comprehensive suite of ALS resources in multiple formats to help you educate your ALS patients and empower them to understand and manage their symptoms.
Clinical ALS Resources
We've developed a comprehensive suite of ALS resources in multiple formats to help you educate your ALS patients and empower them to understand and manage their symptoms.
Patient Resources
ALS patient education to prepare your patients for their journey
Explore and learn about a range of informative patient tools and resources below.
Getting Started Brochure
A resource guide for patients recently diagnosed with ALS. It includes basic information about ALS, tips to help monitor and information about strategies for living with ALS.
A resource guide for patients recently diagnosed with ALS. It includes basic information about ALS, tips to help monitor and information about strategies for living with ALS.
ALS Pathways Patient Podcast Series
Practical information for patients and caregivers on a variety of ALS-related topics that can be streamed or downloaded via a computer or mobile device. New episodes are added regularly.
Practical information for patients and caregivers on a variety of ALS-related topics that can be streamed or downloaded via a computer or mobile device. New episodes are added regularly.
Patient Podcast
Series
Series
A Different Way to Hear About ALS
The convenient, multipart ALS Pathways Patient Podcast Series covers a range of ALS topics – from the science behind ALS to tips on managing and monitoring symptoms. There’s also useful information to help inform caregivers and loved ones for what’s ahead.
Patients can stream or download these free episodes using their smartphones, tablet devices, or desktop computers. Each episode varies in length. Podcasts are a great way for patients to receive practical information at home, on the go, or wherever it’s most convenient.
Patients can stream or download these free episodes using their smartphones, tablet devices, or desktop computers. Each episode varies in length. Podcasts are a great way for patients to receive practical information at home, on the go, or wherever it’s most convenient.
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ALS: The Basics
00:23:27Welcome to the ALS Pathways Podcast Series. In this podcast, we’ll discuss the basics of ALS, including the history and science behind the disease. We’ll review different groups of ALS symptoms and learn about tests used to track and monitor progression.
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Managing ALS
00:29:06As ALS progresses, you will be faced with important decisions about your health. In the second podcast, we’ll review important strategies to help navigate your disease, including the importance of working with a multidisciplinary care team and tips for managing common symptoms.
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Life as a Caregiver
00:24:52Are you a caregiver for someone with ALS? Learn about caring for a loved one throughout their ALS journey and, just as importantly, caring for your own physical and mental health.
Upcoming episodes include conversations with multidisciplinary specialists and people with ALS.
Make sure to inform your patients that new episodes are updated regularly.
What Other Topics Should We Add?
Feel free to give us feedback on the ALS Pathways Patient Podcast Series or suggest a topic you’d like us to cover in the future.
HCP Resources
ALS healthcare provider education to increase identification and diagnosis of ALS in clinical practice
Explore and learn about a range of informative healthcare provider (HCP) tools and resources below.
ALS Diagnosis Aid
This aid provides a detailed overview of the diagnostic procedure, including the key clinical symptoms, to encourage the early detection of ALS and timely referral of patients to multidisciplinary ALS clinics upon suspicion of disease.
This aid provides a detailed overview of the diagnostic procedure, including the key clinical symptoms, to encourage the early detection of ALS and timely referral of patients to multidisciplinary ALS clinics upon suspicion of disease.
Expert Insights on the Important Role of Multidisciplinary
ALS/Neuromuscular Clinics in ALS Management Videos
In ALS, the road to diagnosis is long. Dr. Geneviève Matte and Dr. Wendy Johnston share their individual perspectives on how to find a shorter pathway. In the following videos, they elaborate on the benefits associated with multidisciplinary ALS/neuromuscular clinics and the timing and reasoning for referring suspected patients to these clinics. Dr. Johnston also shares best practices for discussing a potential diagnosis with patients, while Dr. Matte differentiates the types of clinics available for referral in Quebec.
In ALS, the road to diagnosis is long. Dr. Geneviève Matte and Dr. Wendy Johnston share their individual perspectives on how to find a shorter pathway. In the following videos, they elaborate on the benefits associated with multidisciplinary ALS/neuromuscular clinics and the timing and reasoning for referring suspected patients to these clinics. Dr. Johnston also shares best practices for discussing a potential diagnosis with patients, while Dr. Matte differentiates the types of clinics available for referral in Quebec.
ALS Pathways HCP Podcast Series
ALS experts discuss and share practical insights on a variety of ALS-related topics that can be streamed or downloaded via a computer or mobile device. New episodes are added regularly.
ALS experts discuss and share practical insights on a variety of ALS-related topics that can be streamed or downloaded via a computer or mobile device. New episodes are added regularly.
HCP Podcast
Series
Series
Expert insights on ALS
The ALS Pathways Healthcare Provider Podcast Series will cover a range of ALS topics, from identification in clinical practice to discussing a potential diagnosis with a patient. Each podcast will feature different ALS experts as they share their clinical insights on ALS and provide practical tips for closing the diagnostic gap that currently exists and improving management in neurology practice*.
You can stream or download these free episodes using your smartphone, tablet device, laptop, or desktop computer. Each episode is about 30 minutes in length. Podcasts are a great way to receive practical information at home, on the go, or wherever it’s most convenient.
You can stream or download these free episodes using your smartphone, tablet device, laptop, or desktop computer. Each episode is about 30 minutes in length. Podcasts are a great way to receive practical information at home, on the go, or wherever it’s most convenient.
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Key Challenges in the Diagnosis of ALS
00:28:57Many factors contribute to the current ALS diagnostic gap that exists in Canada. Dr. Lorne Zinman and Dr. Hanika Pinto discuss the challenges healthcare providers face, answering key questions and sharing practical tips around the identification and diagnosis of ALS, including key referral flags to look for in your practice.
Breaking the News Podcast
In this episode of Connecting ALS, Jeremy sits down with Dr. Melinda Kavanaugh,
Colleen O’Connell, Cathy Cummings and Marc Massé to talk about the challenges
patients face when receiving a diagnosis, the vital role that healthcare
professionals have when delivering difficult news, the need for professional
training and how this can help improve the experience of people and families
receiving the diagnosis.
What Other Topics Should We Add?
Feel free to give us feedback on the ALS Pathways HCP Podcast Series or suggest a topic you’d like us to cover in the future.
Offer Your Patients Symptom-Specific
ALS information
ALS information
